Chronic Illness
-
Did I Hear That Correct? Surely Not.
I’ll have my first granddaughter in a couple of weeks… she’s not going to be a pincushion. We’re not going to allow that to happen. United States Senator (look up the quote and see what else this senator had to say) Am I disturbed? Am I perturbed? Am I angry? Why, yes, all of the above. And no, this post is not going to be all about vaccines and medical research. However, the debates and the funding cuts continue, and when this continues I will not stay silent. I will give facts. And sometimes some first-hand experience and knowledge. I don’t know if this senator has ever experienced his own…
-
Silence, not optional
“The government rest on his shoulders. The government rest on his shoulders. The government rest on his shoulders” Isaiah 9:6. This verse is on repeat in my heart, mind, soul, and lips. I come to you a day early, because there is a senate hearing tomorrow that is most likely to be a earth shaker for me and my fellow chronic illness friends. Now, I don’t like to go political on here, but I do feel like I am responsible for just giving some important critical facts. Otherwise what have I been doing for 37 years?!? The new administration has already silenced some pretty big deal information centers, departments, people…
-
Simple Christmas
Simple: not complicated; not demanding; manageable. I can say, with a grateful heart, that my Christmas this year was simple. Simple in the ways listed above. On this side of heaven it will never be “simple” in the way of easy; painless; or absent of grief. I will always long for that first Christmas morning with my own little girl. And all the other times I will continue to grieve this side of heaven. However, her name, Lucy, was spoken. Her name was written on packages, in the “From” and “To” spots along with mine. Her ornaments were hung along with all the others. She was remembered and held close.…
-
All You had to do was Ask
“God kept me close and gave me space all at the same time: to ask the questions, to express my anger, to tell him I didn’t understand. He didn’t, and doesn’t, hold it against me or use it to manipulate me into belief. God used this horrific, awful, inexcusable thing that happened to me to replace my shallow faith with one that could, and did, persist through anything. It doesn’t mean the pain hurts less, or that my disability doesn’t still affect my life every single day. It doesn’t even mean the PTSD and the anxiety and fear come any less often. It does mean when those things come and…
-
There Is No Choice
Warning: *It is August and there are already children having to be hospitalized for RSV, pneumonia, and other respiratory illness. This is not their fault, rather it is the wider community that surrounds them that needs to be held accountable! Yes, I am slightly perturbed at the “adults” in this world at the moment.* Personally, I know two children who have been hospitalized with pneumonia in the past month. Their stays were short compared to some, because of their parents being acutely aware of their health and taking quick action. Never hesitate when a child is involved! As the above quote hits the nail on the head for people who…
-
Migraine.
I am constantly torn between: “I can’t let this illness ruin my life” and “I have to listen to my body and rest.” I recently was scrolling through Pinterest and came across this quote. I love collecting quotes, they are excellent reminders that we all are in this together- past, present, and future- we all contribute something! June is Migraine Awareness Month. And the above quote hits so close to home that it brings me to tears. Two quotes that came underneath as “suggested”: “Never get a chronic illness. It’s really inconvenient for other people.” “‘But you did it yesterday.’ Yes, and today I can’t move.” All three of these…
-
Oh my Soul, It is Well!
It is well, it is well, with my soul. The story of this hymn is one of heartbreak, deep grief, and great loss. Mr. Spafford wrote these words while grieving the loss of four his daughters in a shipwreck. “Whatever my lot, Thou has taught me to say, It is Well!” I’ve never known life outside of living with chronic illness, just a fact. Diagnosed at four months, but I am sure my parents would agree asthma and reflux were with me from the start! Another fact is that the words “heal” and “cure” have always been words I associate with Heaven, not earth. It is just one of the…
-
Life Markers
“You normally have to be bashed about a bit by life to see the point of daffodils, sunsets and uneventful nice days.” Alain de Botton Oh how I love this quote I discovered recently! Not until life is interrupted do we slow down to appreciate the lilies of the field and the birds of the air… I have mentioned in previous posts that by nature I am an avid documenter, on the edge of being an information hoarder! 😂 Truly! I love to keep articles on news, places I’d like to visit or places I have gone and want to go back to- it’s a issue I am learning to…
-
Enough.
Have you ever had the thought, “what else?” or “how much more?” Responsibilities, health, to do list, etc. You are spreading yourself thin and then all the sudden it’s as if your body screams, “ENOUGH! Stop! I can’t carry you around one more minute unless you slow down and rest!” If you HAVE been in this place, I hope this post gives you hope from someone in the enough-stop-rest place at this very moment. January is both a joyous and emotional hard month for my soul. So many memories of new beginnings and firsts for me as a Mommy and welcoming my Lucy. And also welcoming many beginnings of new…
-
You are Loved.
Eighteen days into 2024… And what a year it has already been! Maybe your beginning of the year hasn’t been eventful, or maybe be it has been very eventful, even milestone marking eventful! I know a brave little girl who has made tremendous literal steps in her journey this new year, and I am over the moon for her and her family – many prayers spent on knees, tears, hard perseverance and truly leaning hard on Jesus has brought them this far and HE will continue to supply and sustain, I truly believe!!! New life has come. And some have gone. Good news has been reported. And tough news has…
