Hydranencephaly

  • "Life" Books,  Friends & Neighbors,  Grief,  Hydranencephaly,  Jesus,  Mommy,  My Little

    Soul Share

    Today, allow me to share with you some friends I have met along my journey in the past few years. If you have been reading along for a bit, you have most likely gathered that we moved from my childhood home in early 2020, right before COVID hit hard. We moved to our lake/vacation home not too far away, while our new house was being built. Side note: Thank you Jesus for providing a lake home all these years, because COVID plus not having space that was familiar would have made this move incredibly harder. Anyways, the closest store for miles is a Dollar General, which we depended on for…

  • "Life" Books,  Grief,  Hydranencephaly,  Mommy,  My Little

    No Matter What, CELEBRATE!

    Last night I revisited a video on my phone, one that I visit often. It is of one of Lucy’s last really good days. She is alert and responsive, seemingly in very little pain and not struggling with her breathing. Indeed she was very weak, but she was still strong enough to engage with us. I took this video to remember the moment and the day that she had just had. Her cousins had come to visit as well as aunts and uncles. You could feel her peace and contentment, even with all the giggling and playing happening all around her, that almost seemed to put her at peace more.…

  • "Life" Books,  Grief,  Hydranencephaly,  Indeed!,  Mommy,  My Little

    Living in the daily Indeed!

    Indeed! was born out of the statement and response: Christ is Risen! He is Risen Indeed! In my home growing up this was a daily morning greeting. The reminder and the response was necessary, because honestly, nobody is 100% of the time ready to jump out of the bed and get to work every single day. But if you know, believe, and live in the “indeed” He IS absolutely risen, then there is a reason to put forth effort to make Him known and honor Him with your daily practices, routine, and to-dos. My little girl’s hospital and diagnosis anniversary is nearing, as well as her running ahead to Jesus…

  • "Life" Books,  Grief,  Hydranencephaly,  Mommy,  My Little

    Thoughts of a Broken Mommy

    I want to take you on a trip today, one that I find not many will allow me to talk about. One that I am literally aching to tell the world is okay to talk about, ask me about, and is making the world of grieving parents feel as if they are insane. So if you are one of these parents, let me be clear, you are not alone, and you are not insane. I may not know you, but we are together in this journey called life. Keep sharing your story, your child’s name, their story, the world need you and them! Let me take you on a trip,…

  • Grief,  Hydranencephaly,  Mommy,  My Little

    Quality or Quantity?

    Life. So many little choices. So many BIG choices. How do you define quality? How do you define quantity? Which do you value the most? In my post, “This little one calls me Mommy,” I told you all that I would write more on Lucy’s diagnosis of hydranencephaly. This is the hardest post yet, just being real and honest. So please bear with me… Milestones. If you know anything about any pre-adoption prep/education, you know that the words “bonding time” are huge, especially with adoptions under the age of 5. It’s the crucial and critical years of our lives that form us, and more importantly, form our basic foundation for…